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Les Turner ALS Foundation
Приєднався 21 бер 2007
The Les Turner ALS Foundation is one of the longest-serving independent ALS groups in the country. For over 40 years, we have taken an individualized approach to ensure each person living with the disease receives the best quality of care and access to the most promising therapies. We treat each person like family, supporting them every step of the way, and provide their loved ones with answers and encouragement.
Our Les Turner ALS Center at Northwestern Medicine is led by the most well-respected and successful clinicians and researchers in the field, advancing vital care and research in pursuit of life-enhancing treatments and a cure.
Our Les Turner ALS Center at Northwestern Medicine is led by the most well-respected and successful clinicians and researchers in the field, advancing vital care and research in pursuit of life-enhancing treatments and a cure.
Inclusion, Support, and Education in Clinical Research
Join us for our July ALS Learning Series where we will share information about work being done in the areas of inclusion and education in relation to ALS Clinical Research. We will highlight the Northeast ALS Consortium (NEALS) Clinical Research Learning Institute (CRLI) Research Ambassador Program, Community Education Webinars hosted by NEALS, and educational resources focused on aspects of clinical research and Expanded Access created by the Sean M. Healey and AMG Center for ALS at Mass General Hospital (MGH). Information will be shared by Allison Bulat, Strategic Advisor - Community Engagement for NEALS and MGH, and Judi Carey, Research Access Nurse at MGH.
Переглядів: 29
Відео
Les Turner ALS Foundation Ice Bucket 10th Anniversary
Переглядів 22Місяць тому
The ALS Ice Bucket Challenge celebrates its 10-year anniversary. This initiative successfully raised funds for ALS research, and we are thrilled to participate once again and look back on the progress made over the past decade. Today, Global ALS/MND Awareness Day is a great opportunity to reflect on the impact of this challenge and the advancements in ALS research that have been achieved.
Control your phone with your voice
Переглядів 29Місяць тому
What should someone with #ALS do to control their phone or tablet, when tapping on the screen becomes difficult? This ALS Learning Session will describe in detail how to control your mobile devices totally hands-free with just your voice. After seeing how powerful Voice Control is on iPhones and iPads, and Voice Access is on Androids, you'll wonder why these free and easy-to-use software utilit...
Join us at the 2024 ALS Walk For Life
Переглядів 1,7 тис.2 місяці тому
Join us for the largest #als gathering in the Midwest! This event includes a two-mile stroll along the lakefront in Chicago, finishing with a trip through historic Soldier Field. Walking in small groups and big teams, thousands come together to honor loved ones who are living with ALS and remember those we have lost. Walk for the Les Turner ALS Foundation and join a community committed to findi...
Developing Tools to help people living with ALS make difficult decisions
Переглядів 582 місяці тому
People living with ALS must make many complex decisions regarding their future care needs, which can be stressful and overwhelming. In our upcoming ALS Learning Series, with Dr. Anne Hogden, she’ll discuss how she and other researchers have collaborated with the ALS community, their family members, and their ALS care teams to develop tools that support people living with ALS to make informed ch...
Hope Through Caring Gala 2024 Full Program
Переглядів 473 місяці тому
This year, as for the past 35 years, we brought together Chicago's top minds in ALS research and care, business, academics, philanthropy, and most importantly, people living with ALS for a night of hope and celebration. This program features a special video presentation from Governor Pritzker, a tribute to Hall of Fame football player Steve McMichael, and the presentation of our 2 prestigious a...
Steve McMichael Elected to NFL Hall of Fame After ALS Diagnosis
Переглядів 4,8 тис.4 місяці тому
Explore the heartfelt story of Steve McMichael, a Chicago Bears legend, through the eyes of his wife, Misty McMichael. In this deeply personal video, Misty shares insights into their life together, Steve's remarkable career, and his valiant struggle with ALS. Strength and love not only defines their journey but also provides inspiration and hope to many facing similar battles. Help spread aware...
Chicago Bears Legend Steve McMichael, ALS Champion, Elected to NFL Hall of Fame
Переглядів 1604 місяці тому
Join us in commemorating a special moment in football history, as Chicago Bears Legend Steve McMichael is enshrined in the Hall of Fame. Sportswriter Dan Pompei and Bears legend Tom Thayer introduce Steve McMichael as a teammate and a friend and help celebrate this milestone. As we honor McMichael's incredible achievements, we are reminded of the need to support individuals living with ALS. Ple...
A message from Governor Pritzker at the Hope Through Caring Gala
Переглядів 234 місяці тому
Governor J.B Pritzker delivers a special message on the legacy of the Foundation and the importance of our mission.
Hope Through Caring Award Honoree-Anne Lidsky, PhD
Переглядів 1524 місяці тому
At the 36th annual Hope Through Caring Gala, Anne Lidksy, PhD recived the Hope Through Caring Award. Anne was introduced by Bonny Gaffen and Joel Schechter. Dr. Anne Lidsky has been a support group facilitator with the Les Turner ALS Foundation for more than 40 years. In her support groups, Anne creates an environment where caregivers can express their emotions freely - to cry and be honest wit...
Harvey and Bonny Gaffen Advancements in ALS Award Honoree - Dr. Merit Cudkowicz
Переглядів 924 місяці тому
This year at the 36th annual Hope Through Caring Gala, Dr. Mertit Cudkowicz was honored with the Harvey and Bonny Gaffen Advancements in ALS Award. Dr Senda Ajroud-Driss introduced and presented the award to Merit. Dr. Merit Cudkowicz is the Julieanne Dorn Professor of Neurology at Harvard Medical School, Chair of Neurology Service at Mass General Hospital. Dr. Cudkowicz's research and clinical...
A Different Type of Strength
Переглядів 3434 місяці тому
Experience the heart of our mission at the Les Turner ALS Foundation from the voices of individuals living with #ALS and their families. Please watch and share Mario's and Susan's stories, and consider the impact your donation could have. Thank you to the Hernandez and Keldani family for sharing their journeys with us. Donations will be accepted through the end of the year. www.hopethroughcarin...
Navigating Advanced Directives
Переглядів 764 місяці тому
When living with ALS, it is important to think ahead about what kind of care you may want in the future. Advanced directives are a way to ensure that you, your family, and your ALS care team are all on the same page when it comes to treatments you may or may not want. Advanced directives are legal documents that provide instructions for medical care. Join us for our next ALS Learning series whe...
The Role of Multidisciplinary Care in ALS
Переглядів 1484 місяці тому
In our March ALS Learning Series, team members and people living with #als explored the crucial role of collaboration in delivering holistic care. They discussed how multidisciplinary clinics can help people living with ALS to live longer and with a higher quality of life. From exploring treatment options to providing emotional support, our panel illustrated how this approach significantly enha...
A conversation with a genetic counselor: Could the ALS in my family be genetic?
Переглядів 1896 місяців тому
A conversation with a genetic counselor: Could the ALS in my family be genetic?
Mental Health Needs & Supports for People Living with ALS and their Caregivers
Переглядів 3598 місяців тому
Mental Health Needs & Supports for People Living with ALS and their Caregivers
Keynote Presentation: Antisense based therapy for rare neurological diseases
Переглядів 5999 місяців тому
Keynote Presentation: Antisense based therapy for rare neurological diseases
Introduction to the Les Turner Symposium on ALS
Переглядів 669 місяців тому
Introduction to the Les Turner Symposium on ALS
Countering deleterious phase transitions in ALS/FTD
Переглядів 1519 місяців тому
Countering deleterious phase transitions in ALS/FTD
From axon damage to disease: common mechanisms in neurodegeneration
Переглядів 2429 місяців тому
From axon damage to disease: common mechanisms in neurodegeneration
Untangling the convergence of disease mechanisms in ALS using personalized iPSC technologies
Переглядів 2979 місяців тому
Untangling the convergence of disease mechanisms in ALS using personalized iPSC technologies
Potential role of cardiolipin nanoparticles in improving upper motor neuron health in ALS.
Переглядів 1159 місяців тому
Potential role of cardiolipin nanoparticles in improving upper motor neuron health in ALS.
How neuronal stress and brain trauma may contribute to ALS pathogenesis
Переглядів 2589 місяців тому
How neuronal stress and brain trauma may contribute to ALS pathogenesis
Ethical Principles & Informed Consent in Research
Переглядів 2599 місяців тому
Ethical Principles & Informed Consent in Research
Nutrition: Journey from Beginning to End
Переглядів 36511 місяців тому
Nutrition: Journey from Beginning to End
Compassionate Communities for ALS MND Supporting those Caring, Dying and Grieving
Переглядів 247Рік тому
Compassionate Communities for ALS MND Supporting those Caring, Dying and Grieving
A Neurologist Speaks on Advancements in Clinical Research for ALS
Переглядів 698Рік тому
A Neurologist Speaks on Advancements in Clinical Research for ALS
A man is only as strong as the women beside him… Steve is a hulk with her!! God bless her stamina and her dedication 🥲
What a wonderful wife. Sending hugs and prayers!❤❤🙏🙏🙏❤❤
ALS took my uncle who was a 60’s QB for the San Francisco 49’ers. He and two of his teammates all passed from ALS in the 80’s. Bob Waters was his name. He was a tremendous human being.
She’s a great wife too.
God bless the McMichaels and Bear Down Mongo, has always been and will always be a HOF!
The best thecnology Is the dialogue
6 years now since this video.... It is high time...
Love Dr.Driss, she is amazing
Outstanding information
Thank You
Fuck offf
Nice
Many helpful tips.
lovely content
It really depends on the progression of the disease, and with ALS the cure could be right around the next corner, so holding on to it is one of those things that one can hope for
Even with a ventilator, complete muscular atrophy is inevitable with ALS if pneumonia doesn't kill you first. You can still choke on your own saliva which can be fatal. You can't scratch your nose if it itches, you can't be left alone, not even for a minute. There is such thing as outliving quality of life, even with the help of a breathing machine. That is a personal choice, and when the time comes no one should be lambasted for their decision to vent or not to vent.
I would not use ventilation at all. I am sorry but no way. That would not be for me.
Why would you state this? The point was life on vent can be rich and rewarding. I know many vent dependent quads who lead great lives.
wj peace I watched my uncle die from this disease. There is no cure and even on the vent the disease progresses and you eventually become what they call boxed in and well that is just not for me. I have nothing against anyone else if they want to be on the vent. I just would not want to live like that.
It is easy to say "I have nothing against anyone else if they want to be on a vent". But you are saying that in your estimation that sort of life has no value. We do not live or die in a social vacuum.
wj peace no I did not say that. WJ I am going to die myself unfortunately. No I don't have ALS. I have serious heart problems and well it is what it is. Maybe for some they see a value in being on a vent. Do I not have the right to say that I personally do not desire to be on a vent? I am in no ways judging anyone. Please don't take it the wrong way.
I disagree. As a man with a disability I am often told "I would rather be dead than disabled". It is hard not to take that personally. In the same way a person living with a vent can find your comment threatening and judgmental.Respectfully.
that's what I firmly believe in, it's not only patients decision to go on ventilator, it also has to be family's decision. Because doctor puts you on ventilator, and then what? You on your own? No, family takes care of you at home. Unless you have enough money to hire somebody or go to nursing home.
Great segment - very informative!
Wonderful interview!
Hi, phill Schwarz, you look so handsome here, very handsome, god bless you, amen amen.
This is a GREAT foundation Ana Pagan is my God mother and I Cherish every moment I have her. Lori has been a GREAT HELP to her. LORI THANK YOU SOOO MUCH FROM THE BOTTOM OF MY HEART FOR CARING FOR MY God mother as if she were part of your family. I can tell you are passionate about our job and we need more people like this in the world. THANKS AGAIN :)